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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 31
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went to see rheumy nurse and she gave ma a good check and told me i must stop ETENERCEPT STRAIGT AWAY as it is a rare side effect that it can cause nerve smptoms the same as ms she has also sent me to see a neurologist just in case.I have been on etenercept and it was my saviour as far as relief from ra but all anti tnf have the same symptoms so i am slightly relieved i will n be more relieved when i have seen my neurologist .
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 31
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went to see rheumy nurse and she gave ma a good check and told me i must stop ETENERCEPT STRAIGT AWAY as it is a rare side effect that it can cause nerve smptoms the same as ms she has also sent me to see a neurologist just in case.I have been on etenercept and it was my saviour as far as relief from ra but all anti tnf have the same symptoms so i am slightly relieved i will n be more relieved when i have seen my neurologist .
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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You really are having awful prblems at he moment and I'm sending you a big cyber hug - but thank goodness the nurse was on the ball and has stopped the drug for now.
Everything crossed that there is no lasting damage to your nervous system.
Lots of love Jeanxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/4/2009 Posts: 1,524 Location: W. Yorkshire
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Hear hear! YES I'VE CHANGED, PAIN DOES THAT TO PEOPLE.
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Rank: Advanced Member  Groups: Registered
Joined: 1/7/2010 Posts: 441 Location: Bristol
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I'm so glad that you at least are getting closer to finding the cause of this! Hopefully it is just the Etranercept and that you can move on to one of the others with similar success in terms of the RA.
Hope you start feeling better soon!
x x Joanna
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Rank: Advanced Member  Groups: Registered
Joined: 12/10/2009 Posts: 653 Location: Notts
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Hi Cazza
I'm glad you've been given some answers, let's hope it's the enbrel that has been causing the problems.
Lyn
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